Get Inspired!

So this weekend has been hectic so far and will be all the way until Monday morning when it's time to go back to work, but I wanted to get at least one post in because I found inspiration in an unsuspecting place on Friday and can't stop thinking about it.  One of my co-workers who also has an auto-immune disease is doing something about it!  She is involved in an organization call ed Take Steps.  While promoting this event we got to chatting and I'm so glad we did!  As another sufferer of an auto-immune I understand how it is when people don't understand that you are sick because you don't have something like cancer or heart disease and they don't necessarily understand it.  People generally only care or ask or seek knowledge about what directly effects them.  This was a perfect conversation starter as I am the "new girl" there and don't know many of my co-workers.  We didn't have any in depth, eye-opening, philosophical type of conversation that would move Heaven and Earth but just getting to know a little bit about people in your work, community and neighborhood deeper than just your name, age and race is nice sometimes.  It's inspiring in a world where we are so attached to our electronic devices and just rush past each other in the grocery store.  It inspired me and took me back to a time when I was younger and people knew each other better and where more empathetic to each other rather than being so automated all of the time.  It gave me hope!

If you are interested in her cause the link can be found below and donations of any kind are always welcome year round!:

http://online.ccfa.org/site/TR/2013TakeStepsWalk/Chapter-NorthFlorida?px=2337255&pg=personal&fr_id=3852

If you have problems with the link or if expires for any reason please message me and let me know so I can get an updated one.

Something I can relate to

I was trying to explain to my fiance what it is like to be me and how I feel and I don't think he ever really got it.  One day I was trying to figure out if the pain from my fibro was really related to or should I say caused by the Narcolepsy and I came across this article that almost perfectly describes me and just like the writer states in the article every narcoleptic has their own experience and own set of symptoms.  Every narcoleptic experiences these symptoms at different levels.  Some of us have some of the same symptoms but experience more of some and less of others, but one thing is for sure it is really hard to explain to a non-narcoleptic what it's like and apparently it's hard for them to understand.  If you are a non-narcoleptic and you are interested in a great explanation check out this article.  If you are a narcoleptic and would like to direct a non-narcoleptic to a great explanation send them this link or if you would just like to read it so you can have something to relate to I would suggest taking the time to have a good read.  You'll be glad you did!  I was.

http://voices.yahoo.com/narcolepsy-narcoleptics-explanation-disorder-3708382.html?cat=70


Oh, and as far as the pain, who knows which came first, guess it's like the chicken and the egg.  Do I have pain because I don't get the proper restorative sleep my body needs or do I not get sleep because my body is in constant pain?  That is probably a question for a philosopher or a medical professional, neither of which my muddled brain will ever be able to train to be, but that is probably a subject for another day.

Do you see me?

Prose for the compassionate judgmental types:

When you look at me what do you see?  Do you see a bitch?  Do you see a faker?  A complainer?  A whiner?  An attention seeker?  Someone making something out of nothing?  Do you know what it is to be me?  How scared I am?  How alone?  What I feel?  How I hurt?  How exhausted I am EVERY FUCKING DAY with no explanation, no relief?  Do you think I WANT to feel this way?  I WANT TO BE NORMAL!  I want to be perfect!  I want to be like YOU!  You, who sits in your ivory tower watching, judging and whispering about how fucked up I am.  Can't I join you?  Won't you let me join YOUR club and quit this one?

dedicated to all the people who have "invisible" illnesses